Thematic Areas of ERN GUARD-HEART
Rare cardiac diseases are mostly genetic and are present throughout a person’s entire life, even if symptoms do not immediately appear. For the scope of ERN GUARD-HEART, the following thematic areas are identified:
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- ERNs
- ERN GUARD-Heart
- Missions
- European Value
- Target Groups
- Structure and Governance
- Expertise
- Full members
- Belgium
- Croatia
- Czech Republic
- Denmark
- Finland
- France
- Germany
- Hungary
- Ireland
- Italy
- Azienda Ospedaliero Universitaria
- Istituto Auxologico Italiano IRCCS
- IRCCS Policlinico San Donato
- AORN dei Colli/Monaldi Hospital
- Padua University Hospital
- Clinical Scientific Institutes Maugeri IRCCS
- Foundation Policlinico San Matteo IRCCS
- Fondazione Policlinico Universitario A. Gemelli
- Bambino Gesù Children’s Hospital
- Azienda Sanitaria Universitaria Intergrata di Trieste
- Netherlands
- Poland
- Portugal
- Romania
- Spain
- Sweden
- Affiliated partners
- Patients
- European Patient Advocacy Groups
- Supporting partners
- Disease-specific Brochures
- Disease-specific Brochures – CZ
- Disease-specific Brochures – DK
- Disease-specific Brochures – NL
- Disease-specific Brochures – EN
- Disease-specific Brochures – ES
- Disease-specific Brochures – FI
- Disease-specific Brochures – FR
- Disease-specific Brochures – DE
- Disease-specific Brochures – HU
- Disease-specific Brochures – IT
- Disease-specific Brochures – LT
- Disease-specific Brochures – PT
- Disease-specific Brochures – RO
- Disease-specific Brochures – SI
- Disease-specific Brochures – SE
- Disease-specific Brochures – UA
- Laypersons language
- Topic Meetings
- Brugada Syndrome – 25 Mei 2024
- ARVC meeting – Munich, Germany
- Cardiogen Bordeaux France
- COVID-vaccination Brugada syndrome
- CPVT meeting – Amsterdam, The Netherlands
- Genetic cardiomyopathies – Bucharest, Romania
- LQTS meeting – Amsterdam, The Netherlands
- Meeting Brugada Syndrome
- Patient meeting Helsinki
- PLN meeting Murcia
- ePAG Podcast
- Experts
- Registries
- Events
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European Reference Network for Rare and Low Prevalence Complex Diseases of the Heart
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