Associação Coragem (Courage Association)

Diseases Covered
Familial Electrical Diseases
• Long QT syndrome
• Short QT syndrome
• Brugada syndrome
• Catecholaminergic polymorphic ventricular tachycardia
• Idiopathic ventricular fibrillation

Familial Cardiomyopathies
• Arrhythmogenic cardiomyopathy
• Dilated cardiomyopathy
• Hypertrophic cardiomyopathy
• Restrictive cardiomyopathy
• Non-compaction cardiomyopathy

Congenital Heart Diseases
• Aortic stenosis
• Coarctation of the Aorta
• Aortic root dilatation (w/wo associated syndromes)
• Tricuspid atresia
• Pulmonary stenosis
• Pulmonary atresia
• Ebstein anomaly of tricuspid valve
• AV valve congenital disease
• Tetralogy of Fallot
• Univentricular heart
• Pulmonary venous drainage anomalies
• other

Other Rare Cardiac Diseases
• Sarcoidosis
• Amyloidosis
• Myocarditis
• Pericarditis
• rare tumors
• other rare cardiac diseases

• Sudden cardiac death
• Heart transplantation
• Grief support

Aims of the Organization
“Associação Coragem” (Courage Association) – is a patients’ organization with a strong liaison with Hospital de Santa Cruz Pediatric Cardiology Department, whose head office is based at the hospital, and for more than a decade supports patients and families with congenital heart disease and contributes to raise awareness about this situation.

Activities of the Organization
• parent/families support (emotional, logistic, financial..)
• raise awareness of congenital heart disease
• education on congenital heart disease
• medical equipment donation for care optimization, both in hospital and ambulatory

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