Petit Cœur de Beurre

Representative: Gaëlle Marguin

Diseases covered

Congenital Heart Diseases

  • tricuspid atresia
  • pulmonary stenosis
  • aortic and mitral valves
  • VSD
  • Fallot
  • univentricular heart
  • TGA
  • others

 

Aims of the organization

Petit Coeur de Beurre aims to support patients born with congenital heart disease and their families. The association supports patients, but also hospitals, and medical research.

 

Activities

  • Support to patient
    we have volunteers in charge of accompanying patients and families. The association informs patients about their daily lives with the disease, and defends the rights of patients
  • Support to hospitals
    the association finances equipment to improve the conditions of hospitalization (bed chair for example). We also organize animations at the hospital (magic, puppet, workshops well being…)
  • Support to medical research
    the association actively participates in French and European research projects
  • Funding of research programs

More information www.petitcoeurdebeurre.fr

More information https://www.petitcoeurdebeurre.fr/page/43746-l-association

Contact contact@petitcoeurdebeurre.fr