Petit Cœur de Beurre
Petit Cœur de Beurre is a french association of patients about the congenital heart diseases since 2014.
1 in 100 children born with a heart defect and there are more than 300 different congenital heart defects.
The association supports patients and families of patients, hospital, medical research, and awareness-raising, in collaboration with other French patients organizations and the national « Filiere nationale de santé maladies rares » CARDIOGEN, to help to improve knowledge and medical care (including social aspects) of these diseases.
Petit Coeur de Beurre works with healthcare professionals on patient information topics and edits different tools each year to inform.
Association advocates for patients’ rights.
We are composed of a team of volunteers who act on the whole of France.