Association des Maladies héréditaires du RYthme Cardiaque (AMRYC)

Representative: Sophie Pierre

AMRYC is the French patient organization for inherited cardiac rhythmic diseases. When it was founded in 2005, it was first dedicated to the long QT syndrome only and then extended its interest to all inherited cardiac rhythmic diseases.

The purpose of AMRYC is first to welcome and bring attention to families concerned by these rhythmic diseases and then, in collaboration with other French patients organizations and the national « Filiere nationale de santé maladies rares » CARDIOGEN, to help to improve knowledge and medical care (including social aspects) of these diseases.