Previous Events

30 November 2022 12.00 CET: Webinar "Rare Inflammatory Cardiomyopathies"
26 November 2022 : Landelijke patiëntendag DCM & HCM (Amsterdam, The Netherlands, in Dutch)
25 November 2022 15.00 CET: XI Jornada de Cardiogenética (online, in Spanish)
28 October 2022: Cors di formazione per pazienti esperti in malattie erediatarie del miocardio (Milano, Italy, in Italian)
26 October 2022 12.00 CET: The Webinar series for rare or low prevalence cardiovascular diseases
8 October 2022: Le Cardiomiopatie Aritmogene (Padua, Italy, in Italian)
28 September 2022 12.00 CET: Webinar "Role of genetics for ICD decision in Dilated Cardiomyopathy"
27 July 2022: Webinar “Workup of a young Sudden Cardiac Arrest case and how to interpret RyR2 variants”
27 June - 1 July 2022: 11th European Conference on Rare diseases and Orphan Products (ECRD) (online)
14-15 June 2022: ERN Research Training Workshop ‘functional exploration of genetic variants in cardiac diseases’ (Lyon, France)
1 June 2022: International Virtual Mini-Symposium on Genetics of Congenital Heart Disease (online)
27-28 May 2022: Course Cardiac Hereditary Diseases (online by Romanian Society of Cardiology, the Expert Center of Rare Cardiovascular Genetic Diseases and the University of Medicine and Pharmacy of Bucharest)
13 April 2022: A Scientific Network Session focused on Lamin A/C Cardiomyopathy (online by LMNACardiac)
23 February 2022 18.00 - 19.00 CET: Webinar ERN-eUROGEN "Participate in Patient-Centred Rare Disease Research with Share4Rare" (online, register here)
8 February 2022: Eurordis Black Pearl Awards 2022 (online)
26 November 2021: X Jornada de Cardiogenética (online, in Spanish)
27 May 2021: 1st General Assembly and the kick-off meeting of the European Rare Disease Research Coordination and Support Action - ERICA
16/17 April 2021: Hereditary Heart Diseases (online)
24 February 2021: EURORDIS Black Pearl Awards 2021 (online)
11 February 2021: Update over COVID-19 en vaccineren (in Dutch, online)
October 2020 - January 2021: PROMS - PREMS workshop (online)
2020 - May 14th & 15th: ECRD 2020 - The 10th European Conference on Rare Diseases & Orphan Products (online)
2020 - February 6th & 7th: Lesrencontres Lyonnaises de Rythmologie (Lyon, France)
2019 - November 28th: Patient and Experts PLN Meeting (Murcia, Spain)
2019 - November 9th: Patient Meeting CPVT (Amsterdam, The Netherlands)
2019 - October 26th: Patient Meeting CMP (Bucharest, Romania)
2019 - June 10th - 12th: Nordic-Baltic Congress of Cardiology (Helsinki, FI)
2019 - April 4th: Cardiovascular Genetic Diseases course (Bucharest, RO)
2019 - March 28th: Launch app CARDIAC PATROL (Amsterdam, NL)
2019 - March 9th: 6e Journée annuelle filière Cardiogen-PUBLIC (Bordeaux, FR)
2019 - March 2nd: Dutch meeting for patients and families with long QT syndrome (LQTS bijeenkomst, Amsterdam, NL)
2019 - February 23th: German ARVC day (Munich, DE)
2018 - December 6th: Educational Meeting (London, UK)
2018 - September 6 & 18: RD-Connect webinars
2018 - April: Cardiac Hereditary Diseases (Bucharest, Romania)
2017 - November: International Workshop on Arrhythmogenic Cardiomyopathy (Athens, Greece)
2017 - November: VI Jornada de Cardiogenética (Murcia, Spain)
2017 - October: Update in Cardiomyopathies & Heart Failure (Napels, Italy)
2017 - September: 47th Nordic Paediatric Cardiology Meeting (Turku, Finland)