Non-profit foundation Hart4Onderzoek (English: Heart4Research) is the first platform of patient representatives in the Netherlands that aims to bridge the gap between patients with rare (genetic or congenital) heart diseases and (international) scientific researchers.
Hart4Onderzoek consists of 2 patient advocates: Dayenne Zwaagman (1982, communication specialist) is a Fontan patient and Simone Louisse (International delivery center production manager) is a Tetralogy of Fallot patient.
Hart4Onderzoek is the only patient driven charity that aims to raise (crowd)funding for scientific research in genetic and congenital heart diseases in adults and adolescents. The focus of Hart4Onderzoek lies on research proposals and ideas of young investigators and small-scale research projects. Patients and researchers cooperate in innovative medical science projects and aim to improve the quality of life of patients with genetic and congenital heart diseases.
The board of Hart4Onderzoek also provides educational services and lectures for (bio)medical students, nurses, cardiologists and other healthcare professionals in the field of cardiovascular & congenital diseases or exercise physiology.
For more information about “Hart4Onderzoek”, please visit the website.