Supporting partners in ERN GUARD-Heart

Patient Organisations or patient representatives that do not have a representative in the ePAG group (e.g., because they don´t have the time for meetings during daytime), but who are willing to collaborate on specific tasks (e.g., respond to surveys), help to disseminate information about the ERN and be kept informed on the development of the ERN activities. 

EPAGCountryDisease area
ACMRC (IT)Italy2
CRY (UK)UK1, 2, 3
Hjärtebarnsfonden (SE)Sweden1, 2, 3
Riksförbundet HjärtLung (SE)Sweden1, 2, 3
CAKO (CZ)Czech Republic1, 2
PAH (NL)The Netherlands1, 2, 3