EU, please stand by the ERNs

ERN GUARD-Heart has co-signed an open letter in which the ERN Network Coordinators and people living with a rare disease across Europe have asked Ursula von der Leyen (President of the European Commission), Roberta Metsola (President of the European Parliament) and the Heads of Governments of EU Member States to stand by and uphold their commitment to the ERNs to enable long-lasting impact in people’s lives and, fundamentally, give all people living with a rare or complex condition in Europe the same opportunities to access timely and adequate pecialized healthcare.

You can read the full letter here.