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ERN GUARD-Heart

ERN GUARD-Heart

European Reference Network for Rare and Low Prevalence Complex Diseases of the Heart

  • Home
  • European Reference Networks (ERNs)
    • Background
    • EU Protects
    • What are ERNs?
    • List of ERNs
  • ERN GUARD-HEART
    • Missions
    • European Value
    • Target Groups
    • Structure and Governance
  • Expertise
    • Familial Electrical Diseases
    • Familial Cardiomyopathies
    • Special Electrophysiology Conditions
  • Centres
    • Belgium
      • University Hospital Brussels
      • University Hospitals Leuven
    • Czech Republic
      • University Hospital Motol
    • Denmark
      • Copenhagen University Hospital Rigshospitalet
    • Finland
      • Helsinki University Hospital
    • France
      • AP-HP Pitié Salpêtrière Hospital
      • Louis Pradel Cardiovascular Hospital
      • Nantes University Hospital
    • Germany
      • University Hospital Münster
    • Italy
      • AORN dei Colli/Monaldi Hospital
      • Bambino Gesù Children’s Hospital
      • Clinical Scientific Institutes Maugeri IRCCS
      • Foundation Policlinico San Matteo IRCCS
      • Istituto Auxologico Italiano IRCCS
      • Padua University Hospital
    • Netherlands
      • Amsterdam University Medical Centres
    • Romania
      • Emergency Institute for Cardiovascular Diseases
    • Spain
      • Sant Juan de Déu – Barcelona Children’s Hospital
      • University Hospital Puerta de Hierro Majadahonda
      • University Hospital Virgen Arrixaca
    • Sweden
      • Umeå University Hospital
    • United Kingdom
      • Barts Health NHS Trust
      • Great Ormond Street Hospital NHS Trust
      • St George’s Healthcare NHS Trust
  • Patients
    • European Patient Advocacy Groups
      • ARVC-selbsthilfe
        • Ruth Biller
      • Cardiac Risk in the Young
        • Steven Cox
      • Danish Heart Foundation
      • Hart4Onderzoek
        • Dayenne Zwaagman
        • Simone Louisse
      • Harteraad
        • Marion van Sinttruije
        • Max Groenhart
        • Patricia Vlasman
      • Síndromes Arrítmicos relacionados con la Muerte Súbita
        • Ester Costafreda
    • Disease-specific Brochures
      • Disease-specific Brochures – CZ
      • Disease-specific Brochures – DK
      • Disease-specific Brochures – NL
      • Disease-specific Brochures – EN
      • Disease-specific Brochures – ES
      • Disease-specific Brochures – FI
      • Disease-specific Brochures – FR
      • Disease-specific Brochures – IT
      • Disease-specific Brochures – SE
    • Topic Meetings
      • LQTS Amsterdam
  • Disease Registries
  • Events
    • Future Events
    • Previous Events
      • Launch Cardiac PATROL app
      • LQTS bijeenkomst
  • Newsletters
  • About
    • Project Management Office
    • Contact
    • Links
  • Home
  • Patients

Patients Advocacy & Materials

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Latest News

  • March 2019: Launch Cardiac PATROL app
  • March 2019: Dutch LQTS day
  • February 2019: German ARVC day
  • Februari 2019: ERN GUARD-Heart Board Meeting
  • December 2018: Patient Groups Meeting

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© 2017 ERN GUARD-Heart.
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