European Reference Network for Rare and Low Prevalence Complex Diseases of the Heart
ERN GUARD-Heart Contributes to EU Call for Evidence on Cardiovascular Health Checks ERN GUARD-Heart has successfully contributed to the European Commission’s Call for Evidence on cardiovascular health checks with the submission of a coalition document titled: “Strengthening EU cardiovascular health READ MORE
ERDERA will launch its Clinical Trial Call 2026 on 1 July 2026, supporting multinational Phase I–II clinical trials in rare diseases. The call promotes collaborative studies across countries, focusing on areas of high unmet medical need, and follows a multi-stage READ MORE
Launch of Biweekly CPMS Online Case Meetings As of May 2026, ERN GUARD-Heart has launched a new series of biweekly online Clinical Patient Management System (CPMS) meetings to strengthen collaboration and knowledge exchange across the network. The first session took READ MORE
CardioGen Romania: From a Family Diagnosis to a National Pillar of Support In the world of rare and genetic cardiovascular diseases, the journey often begins with a single heartbeat—or, in our case, a life-altering diagnosis. CardioGen was born in 2021 READ MORE
The European Commission has opened the 2026 Call for Affiliated Partners within the European Reference Networks (ERNs). This call aims to strengthen collaboration across Europe and to improve access to highly specialised care for patients with rare and complex diseases. READ MORE
The European Rare Diseases Research Alliance- ERDERA has launched the 2026 Joint Transnational Call, focused on diagnosing undiagnosed or complex rare conditions using advanced functional, genomic, multi-omics, modelling, and AI-based approaches. Purpose To address diagnostic gaps in rare diseases, support READ MORE
Céline’s Journey: Perseverance, Resilience, and Hope Our Family’s Story and Commitment to AMRYC (Association for Hereditary Cardiac Rhythm Disorders) Introduction: Presenting Céline and Our Family Context I’m Sophie Pierre, vice-president of AMRYC (France) which aims at supporting all patients suffering READ MORE