European Reference Network for Rare and Low Prevalence Complex Diseases of the Heart
CardioGen Romania: From a Family Diagnosis to a National Pillar of Support In the world of rare and genetic cardiovascular diseases, the journey often begins with a single heartbeat—or, in our case, a life-altering diagnosis. CardioGen was born in 2021 READ MORE
The European Commission has opened the 2026 Call for Affiliated Partners within the European Reference Networks (ERNs). This call aims to strengthen collaboration across Europe and to improve access to highly specialised care for patients with rare and complex diseases. READ MORE
Céline’s Journey: Perseverance, Resilience, and Hope Our Family’s Story and Commitment to AMRYC (Association for Hereditary Cardiac Rhythm Disorders) Introduction: Presenting Céline and Our Family Context I’m Sophie Pierre, vice-president of AMRYC (France) which aims at supporting all patients suffering READ MORE