My name is Ester Costafreda. My son Angel died in 2014 of sudden death when he was 15 years old. It was only after several months that we found out that he had a rare cardiac disease called Arrhythmogenic left ventricular cardiomyopathy and we could protect other members of the family affected by the disease.
In 2017 we constituted our SAMS association in Spain to fight against arrhythmic syndromes that can provoke sudden death together with my husband and another mother whose son died some months before mine when he was 11 because of sudden death. Currently we have more than 100 associates.