Hart4Onderzoek (Heart4Research, H4O)
Diseases covered:
Hart4Onderzoek is an organization for Adults with Congenital Heart Diseases, irrespective of which congenital heart disease
- tricuspid atresia
- pulmonary stenosis
- pulmonary atresia
- aortic and mitral valves
- VSD
- Fallot
- univentricular heart
- Others
Aims of the Organization
Heart4Research (Hart4Onderzoek) is the first Dutch platform that brings together scientific research on (rare) congenital heart and vascular diseases together with the patients (both national and international).
The foundation aims to include adults and aging patients in research and care by among others promoting and pushing for a shift in the research agenda and also by ensuring that the growing medical insights support us as adult congenital heart disease patients.
Lately we have slightly shifted our focus to include also research and support for mental health of the patients in our community.
Hart4Onderzoek is the only patient driven charity that aims to raise (crowd)funding for scientific research in genetic and congenital heart diseases in adults and adolescents. The focus of Hart4Onderzoek lies on research proposals and ideas of young investigators and small-scale research projects. Patients and researchers cooperate in innovative medical science projects and aim to improve the quality of life of patients with genetic and congenital heart diseases.
Activities of the Organization
Among others:
Collecting funds for our goals by participating to fundraising activities like the famous “Dam to Dam” run in Netherlands.
Speaking on conferences explaining our patient perspective ensuring clinicians and researchers keep us in mind with all they do.
Participate to training activities at universities to ensure new clinicians know us and will put the patients at the center in everything they do in their profession going forwards.
Provide educational services and lectures for (bio)medical students, nurses, cardiologists and other healthcare professionals in the field of cardiovascular & congenital diseases or exercise physiology.
Organizing activities and workshops to empower and support our patients with congenital heart diseases and their families and help them living with the disease in their daily life (for example study & work, family planning, sports, having a healthy and active lifestyle, e.g. impact-day on sport and moving with a congenital heart disease in 2023).
More information hart4onderzoek.nl
Contact: info@hart4onderzoek.nl