European Reference Network for Rare and Low Prevalence Complex Diseases of the Heart
5 years evaluation process of the ERN’s An important activity for the upcoming months is the 5 years evaluation process of the ERN. This has officially started following the signature of the contract with the independent evaluation body on 9 READ MORE
ERN GUARD-Heart Webinars for experts This summer we started a series of educational webinars on all different thematic areas within our ERN for healthcare professionals. Each month, there will be a live webinar via ZOOM, where 2 cases will be READ MORE
All 24 ERNs Unite to Help Ukrainian Rare Disease Patients Share it with #ERNcare4Ua All 24 European Reference Networks (ERNs) have launched a dedicated website and social media campaign to collect information to help health professionals to find support for Ukrainian patients READ MORE