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    • Background
    • EU Protects
    • What are ERNs?
    • List of ERNs
  • ERN GUARD-Heart
    • Missions
    • European Value
    • Target Groups
    • Structure and Governance
    • Expertise
      • Thematic area 1: Familial Electrical Diseases in Adults and Children
      • Thematic area 2: Familial Cardiomyopathies in Adults and Children
      • Thematic area 3: Special Electrophysiology Conditions
      • Thematic area 4: Congenital Heart Diseases in Adults and Children
      • Thematic area 5: Other Rare Cardiac Diseases
    • Full members
      • Belgium
        • Antwerp University Hospital
        • University Hospital Brussels
        • University Hospitals Leuven
      • Croatia
        • University Hospital Centre Zagreb
      • Czech Republic
        • IKEM
        • University Hospital Motol
      • Denmark
        • Aarhus Universitets Hospital
        • Copenhagen University Hospital Rigshospitalet
      • Finland
        • Helsinki University Hospital
      • France
        • Bordeaux University Hospital
        • French consortium
        • Louis Pradel Cardiovascular Hospital
        • Nantes University Hospital
      • Germany
        • Munich Consortium
        • University Hospital Münster
      • Hungary
        • University of Szeged
      • Ireland
        • Irish Inherited Cardiac Conditions Network
      • Italy
        • Azienda Ospedaliero Universitaria
        • Istituto Auxologico Italiano IRCCS
        • IRCCS Policlinico San Donato
        • AORN dei Colli/Monaldi Hospital
        • Padua University Hospital
        • Foundation Policlinico San Matteo IRCCS
        • Fondazione Policlinico Universitario A. Gemelli 
        • Bambino Gesù Children’s Hospital
        • Azienda Sanitaria Universitaria Intergrata di Trieste
      • Netherlands
        • Amsterdam University Medical Centres
        • Maastricht UMC+
        • Erasmus MC
        • University Medical Center Utrecht
      • Poland
        • Upper-Silesian Medical Centre
      • Portugal
        • Centro Hospitalar de Lisboa Ocidental
        • CHU de Lisboa Central
        • Centro Hospitalar de São João
      • Romania
        • Emergency Institute for Cardiovascular Diseases
      • Spain
        • Hospital Clínic de Barcelona
        • Vall d’Hebron Hospital
        • Sant Juan de Déu – Barcelona Children’s Hospital
        • Gregorio Marañon
        • University Hospital Puerta de Hierro Majadahonda
        • University Hospital Virgen Arrixaca
        • Complejo Hospitalario Regional Virgen del Rocío
      • Sweden
        • Umeå University Hospital
    • Affiliated partners
      • Associated National Centers
        • Austria: Medical University Innsbruck
        • Austria: Medical University of Vienna
        • Estonia: Tartu University Hospital
        • Lithuania: University of Health Sciences Kaunas
        • Lithuania: Santaros Klinika Vilnius
        • Slovakia: Medical University Bratislava
        • Slovenia-Ljubljana
      • Coordination HUBs
        • Luxembourg: Centre Hospitalier de Luxembourg
        • Malta: Mater Dei Hospital
  • Patients
    • European Patient Advocacy Groups
      • AICARM (IT)
        • Matteo Pinciroli
      • AICCA (IT)
        • Giovanna Campioni
      • AMRYC (FR)
        • Sophie Pierre
      • ARVC-Selbsthilfe (DE)
        • Ruth Biller
      • CardioGen (RO)
        • Carmen Balan
      • Coragem (PT)
        • Inês Pinto Gonçalves
      • Hart4Onderzoek (NL)
        • Simone Louisse
        • Dayenne Zwaagman
      • Herzkinder Fulda / BVHK (DE)
        • Carola Ossenkopp
      • HCM SS (SE)
        • Jerker Liljestrand
        • Lottis Katarina Charlotte Hörting
      • Irish Heart Foundation (IE)
        • Lorraine McGlinchey
      • LMNA Cardiac (NL)
        • Stefan Bassant
      • Petit Coeur de Beurre (FR)
        • Gaelle Marguin
      • SAMS (ES)
        • Ester Costafreda
      • Sydänlapset ja-aikuiset (FI)
        • Katja Laine
      • TSA (UK)
        • Sophie Muir
    • Supporting partners
      • ACMRC (IT)
      • CAKO (CZ)
        • Kristýna Čillíková
      • CRY (UK)
        • Steven Cox
      • FAST Bulgaria
      • Hjärtebarnsfonden (SE)
      • Hjerteforeningen (DK)
        • Lisbeth Vestergaard Andersen
      • Mended Hearts Europe (CH)
      • PAH (NL)
        • Judith van de Meerakker
      • Riksförbundet HjärtLung (SE)
        • Catrine Jacobsson
      • Srdíčkáři (CZ)
      • SZÍVSN
        • Péter Kovács
        • Mrs. Bernáth-Lukács Zsuzsa
    • Disease-specific Brochures
      • Disease-specific Brochures – CZ
      • Disease-specific Brochures – DK
      • Disease-specific Brochures – NL
      • Disease-specific Brochures – EN
      • Disease-specific Brochures – ES
      • Disease-specific Brochures – FI
      • Disease-specific Brochures – FR
      • Disease-specific Brochures – DE
      • Disease-specific Brochures – HU
      • Disease-specific Brochures – IT
      • Disease-specific Brochures – LT
      • Disease-specific Brochures – PT
      • Disease-specific Brochures – RO
      • Disease-specific Brochures – SI
      • Disease-specific Brochures – SE
      • Disease-specific Brochures – UA
    • Laypersons language
      • Electrical heart diseases
      • Cardiomyopathies
      • Specific conditions in children
      • Congenital heart diseases
      • Other rare cardiac diseases
      • General/Varia
      • Guidelines & Consensus statements
    • Topic Meetings
      • Brugada Syndrome – 25 Mei 2024
      • ARVC meeting – Munich, Germany
      • Cardiogen Bordeaux France
      • COVID-vaccination Brugada syndrome
      • CPVT meeting – Amsterdam, The Netherlands
      • Genetic cardiomyopathies – Bucharest, Romania
      • LQTS meeting – Amsterdam, The Netherlands
      • Meeting Brugada Syndrome
      • Patient meeting Helsinki
      • PLN meeting Murcia
    • ePAG Podcast
  • Experts
    • Exchange Programme 2024-2027
    • 5 years evaluation process
    • Educational videos
    • Forms
    • Podcast series
    • Summerschool
    • Tools
    • Webinar series
  • Registries
    • Condition-Specific Registries
    • Heart-Core Registry
  • Events
    • Future Events
    • Previous Events
      • Launch Cardiac PATROL app
  • About
    • Project Management Office
    • Contact
    • COVID-19
    • Newsletters
      • Subscribe newsletter
      • Unsubscribe newsletter
    • Links
    • For members
ERN GUARD-Heart

ERN GUARD-Heart

European Reference Network for Rare and Low Prevalence Complex Diseases of the Heart

  • Home
  • ERNs
    • Background
    • EU Protects
    • What are ERNs?
    • List of ERNs
  • ERN GUARD-Heart
    • Missions
    • European Value
    • Target Groups
    • Structure and Governance
    • Expertise
      • Thematic area 1: Familial Electrical Diseases in Adults and Children
      • Thematic area 2: Familial Cardiomyopathies in Adults and Children
      • Thematic area 3: Special Electrophysiology Conditions
      • Thematic area 4: Congenital Heart Diseases in Adults and Children
      • Thematic area 5: Other Rare Cardiac Diseases
    • Full members
      • Belgium
        • Antwerp University Hospital
        • University Hospital Brussels
        • University Hospitals Leuven
      • Croatia
        • University Hospital Centre Zagreb
      • Czech Republic
        • IKEM
        • University Hospital Motol
      • Denmark
        • Aarhus Universitets Hospital
        • Copenhagen University Hospital Rigshospitalet
      • Finland
        • Helsinki University Hospital
      • France
        • Bordeaux University Hospital
        • French consortium
        • Louis Pradel Cardiovascular Hospital
        • Nantes University Hospital
      • Germany
        • Munich Consortium
        • University Hospital Münster
      • Hungary
        • University of Szeged
      • Ireland
        • Irish Inherited Cardiac Conditions Network
      • Italy
        • Azienda Ospedaliero Universitaria
        • Istituto Auxologico Italiano IRCCS
        • IRCCS Policlinico San Donato
        • AORN dei Colli/Monaldi Hospital
        • Padua University Hospital
        • Foundation Policlinico San Matteo IRCCS
        • Fondazione Policlinico Universitario A. Gemelli 
        • Bambino Gesù Children’s Hospital
        • Azienda Sanitaria Universitaria Intergrata di Trieste
      • Netherlands
        • Amsterdam University Medical Centres
        • Maastricht UMC+
        • Erasmus MC
        • University Medical Center Utrecht
      • Poland
        • Upper-Silesian Medical Centre
      • Portugal
        • Centro Hospitalar de Lisboa Ocidental
        • CHU de Lisboa Central
        • Centro Hospitalar de São João
      • Romania
        • Emergency Institute for Cardiovascular Diseases
      • Spain
        • Hospital Clínic de Barcelona
        • Vall d’Hebron Hospital
        • Sant Juan de Déu – Barcelona Children’s Hospital
        • Gregorio Marañon
        • University Hospital Puerta de Hierro Majadahonda
        • University Hospital Virgen Arrixaca
        • Complejo Hospitalario Regional Virgen del Rocío
      • Sweden
        • Umeå University Hospital
    • Affiliated partners
      • Associated National Centers
        • Austria: Medical University Innsbruck
        • Austria: Medical University of Vienna
        • Estonia: Tartu University Hospital
        • Lithuania: University of Health Sciences Kaunas
        • Lithuania: Santaros Klinika Vilnius
        • Slovakia: Medical University Bratislava
        • Slovenia-Ljubljana
      • Coordination HUBs
        • Luxembourg: Centre Hospitalier de Luxembourg
        • Malta: Mater Dei Hospital
  • Patients
    • European Patient Advocacy Groups
      • AICARM (IT)
        • Matteo Pinciroli
      • AICCA (IT)
        • Giovanna Campioni
      • AMRYC (FR)
        • Sophie Pierre
      • ARVC-Selbsthilfe (DE)
        • Ruth Biller
      • CardioGen (RO)
        • Carmen Balan
      • Coragem (PT)
        • Inês Pinto Gonçalves
      • Hart4Onderzoek (NL)
        • Simone Louisse
        • Dayenne Zwaagman
      • Herzkinder Fulda / BVHK (DE)
        • Carola Ossenkopp
      • HCM SS (SE)
        • Jerker Liljestrand
        • Lottis Katarina Charlotte Hörting
      • Irish Heart Foundation (IE)
        • Lorraine McGlinchey
      • LMNA Cardiac (NL)
        • Stefan Bassant
      • Petit Coeur de Beurre (FR)
        • Gaelle Marguin
      • SAMS (ES)
        • Ester Costafreda
      • Sydänlapset ja-aikuiset (FI)
        • Katja Laine
      • TSA (UK)
        • Sophie Muir
    • Supporting partners
      • ACMRC (IT)
      • CAKO (CZ)
        • Kristýna Čillíková
      • CRY (UK)
        • Steven Cox
      • FAST Bulgaria
      • Hjärtebarnsfonden (SE)
      • Hjerteforeningen (DK)
        • Lisbeth Vestergaard Andersen
      • Mended Hearts Europe (CH)
      • PAH (NL)
        • Judith van de Meerakker
      • Riksförbundet HjärtLung (SE)
        • Catrine Jacobsson
      • Srdíčkáři (CZ)
      • SZÍVSN
        • Péter Kovács
        • Mrs. Bernáth-Lukács Zsuzsa
    • Disease-specific Brochures
      • Disease-specific Brochures – CZ
      • Disease-specific Brochures – DK
      • Disease-specific Brochures – NL
      • Disease-specific Brochures – EN
      • Disease-specific Brochures – ES
      • Disease-specific Brochures – FI
      • Disease-specific Brochures – FR
      • Disease-specific Brochures – DE
      • Disease-specific Brochures – HU
      • Disease-specific Brochures – IT
      • Disease-specific Brochures – LT
      • Disease-specific Brochures – PT
      • Disease-specific Brochures – RO
      • Disease-specific Brochures – SI
      • Disease-specific Brochures – SE
      • Disease-specific Brochures – UA
    • Laypersons language
      • Electrical heart diseases
      • Cardiomyopathies
      • Specific conditions in children
      • Congenital heart diseases
      • Other rare cardiac diseases
      • General/Varia
      • Guidelines & Consensus statements
    • Topic Meetings
      • Brugada Syndrome – 25 Mei 2024
      • ARVC meeting – Munich, Germany
      • Cardiogen Bordeaux France
      • COVID-vaccination Brugada syndrome
      • CPVT meeting – Amsterdam, The Netherlands
      • Genetic cardiomyopathies – Bucharest, Romania
      • LQTS meeting – Amsterdam, The Netherlands
      • Meeting Brugada Syndrome
      • Patient meeting Helsinki
      • PLN meeting Murcia
    • ePAG Podcast
  • Experts
    • Exchange Programme 2024-2027
    • 5 years evaluation process
    • Educational videos
    • Forms
    • Podcast series
    • Summerschool
    • Tools
    • Webinar series
  • Registries
    • Condition-Specific Registries
    • Heart-Core Registry
  • Events
    • Future Events
    • Previous Events
      • Launch Cardiac PATROL app
  • About
    • Project Management Office
    • Contact
    • COVID-19
    • Newsletters
      • Subscribe newsletter
      • Unsubscribe newsletter
    • Links
    • For members
  • Home
  • Experts
  • Forms

Forms for experts

Sudden Cardiac Death Letter for the Family
CRF LQTS and sports
Project information LQTS and sports
Reimbursement for completed cases in CPMS
Generated Documents for Registries

Latest news

  • ERDERA 2026 Joint Transnational Call – Now Open
  • Who are our ePAG’s?Céline’s Journey: Perseverance, Resilience, and Hope
  • Exchange Programme 2024-2025
  • EU, please stand by the ERNs
  • Podcast series

Latest newsletter

Tools for experts

CPMS

ERN Collaborative Platform

LQTS and sports

Links for more information

EU Protects

European Joint Programme on Rare Diseases

More…

© 2023 ERN GUARD-Heart
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