European Reference Network for Rare and Low Prevalence Complex Diseases of the Heart
EURORDIS Black Pearl Awards 2021 The EURORDIS Black Pearl Awards is an annual awards ceremony that takes place every February to celebrate advancements in the rare disease field. In 2021, we’ll take a moment to reflect upon the far-reaching READ MORE
PROMS – PREMS online workshops The Heart Rhythm Management Centre (HRMC) and Centre for Medical Genetics (CMG) of the University Hospital of Brussels, UZ Brussel, in collaboration with ERN GUARD-Heart, would like to invite you to four online workshops in READ MORE
Heart-Core Registry ERN GUARD-Heart aims to develop a comprehensive approach for rare cardiac disease registration by establishing an overarching patient registry (the Heart-Core Registry) using standards and tools provided by the European Platform on Rare Disease Registration (EU RD Platform). READ MORE