SZÍVSN
Disease(s) CoveredFamilial Electrical Diseases
- Long QT syndrome
- Short QT syndrome
- Brugada syndrome
- Catecholaminergic polymorphic ventricular tachycardia
- Idiopathic ventricular fibrillation
Familial Cardiomyopathies
- Arrhythmogenic cardiomyopathy
- Dilated cardiomyopathy
- Hypertrophic cardiomyopathy
- Restrictive cardiomyopathy
- Non-compaction cardiomyopathy
Congenital Heart Diseases
- tricuspid atresia
- pulmonary stenosis
- pulmonary atresia
- aortic and mitral valves
- VSD
- Fallot
- univentricular heart
- others
Other Rare Cardiac Diseases
- Sarcoidosis
- Amyloidosis
- Myocarditis
- Pericarditis
- rare tumors
- other rare cardiac diseases
Other
- Sudden cardiac death
- Grief support
Aims of the Organization
SZÍVSN is a Hungarian National Patient Association, its main aim to bring together cardiovascular patient as a big family, as well as educate them regarding their diseases and provide solutions for daily living and treatments. Beyond that SZIVSN acts a bridge between patient and the Hungarian Society of Cardiologists, having these in-place concerned people get more accurate and more professional medical supports on short notice.
Activities of the Organization
Organizing regular cardiovascular controls for residents of rural settlements participating in the national coordinator network of the SZÍVSN National Patient Association, launching online patient education, expanding the INR meter rental network, enhance the awareness and membership of the SZÍVSN organization, also distributing the collected donations.
The appointed area coordinator’s directly contacting patients, by this they create a database with email contact, telephone number. Also directing patients to the www.szivsn.hu website and subscribing to the newsletter to be up to date.
Holding online interactive meetings/trainings 3-times a month for those who are interested in the topics of prevention, pacemaker, ICD, infarction, people with genetically high cholesterol (FH), arrhythmia, artificial valve, heart failure.
Having close cooperation with the several cities local government (eg. Törökszentmiklós, Gyula, Dunaújváros, Miskolc, Szeged and Budapest), organizing preventive controls at several locations 4 times year, where we offering wide range of medical checks with proper documents: blood sugar, cholesterol, blood pressure measurements, and ECG recording to register arrhythmias.
Expanding the home INR measurement campaign and renting network (books, blood pressure monitors, WIWE device, INR measurement device).
Sharing and presenting the achieved results at Hungarian cardiovascular conferences.
After successful campaign, we conduct health and sociological survey, which wel present and publish on several professional forums.
Regularly and continuously publish achieved results on our social media platforms:
https://szivsn.hu/media-megjelenesek/
https://www.facebook.com/szivsn
Contact of organization (Email)
szivsn@gmail.com