FAST Bulgaria
Disease(s) Covered
Other
• Sudden cardiac death
• Angelman Syndrome
Aims of the Organization
FAST Bulgaria aims to support individuals with Angelman syndrome and their families in Bulgaria. The organization focuses on raising awareness, providing educational resources, advocating for better healthcare and access to therapies, and creating a supportive community for affected families.
Activities of the Organization
FAST Bulgaria organizes informational events and support group meetings for families, collaborates with healthcare professionals and researchers, participates in international networks for Angelman syndrome, and develops educational materials and resources for parents and caregivers. The organization also advocates for clinical research and access to innovative therapies in Bulgaria.
Contact address
More information