Srdíčkáři (Czech pediatric cardiac PAG)
Disease(s) Covered
Familial Electrical Diseases
- Long QT syndrome
- Short QT syndrome
- Brugada syndrome
- Catecholaminergic polymorphic ventricular tachycardia
- Idiopathic ventricular fibrillation
Familial Cardiomyopathies
- Arrhythmogenic cardiomyopathy
- Dilated cardiomyopathy
- Hypertrophic cardiomyopathy
- Restrictive cardiomyopathy
- Non-compaction cardiomyopathy
Congenital Heart Diseases
- tricuspid atresia
- pulmonary stenosis
- pulmonary atresia
- aortic and mitral valves
- VSD
- Fallot
- univentricular heart
- others
Other Rare Cardiac Diseases
- Sarcoidosis
- Amyloidosis
- Myocarditis
- Pericarditis
- rare tumors
- other rare cardiac diseases
The main aims of the association are:
- to contribute to public awareness of the problems and treatment of congenital heart disease; mutual help and support for families with children with heart defects.
- to organise meetings, sports and leisure activities for parents and members;
- exchange of information and experience between the medical community, parents of children with heart defects and the general public.
- promoting the interests of the medically disadvantaged
- organising public support collections
Activities of the Organization
The association achieves the above aims mainly by
- operating a website and information resources on social networks
- organising meetings, sports and leisure activities for parents and members
- publishing and distributing information leaflets and promotional materials;
- cooperating with associations, foundations and others with a similar nature or purpose
- project activities to obtain financial support from grants and subsidies
- the production, purchase and sale of goods to raise support
Contact of organization
spoleksrdickari@gmail.com
More information: https://www.srdickari.cz