Cardiogen patient organisation Romania

Cardiogen Patient Association is an organization that has the purpose to represent and protect the interest of patients with cardiac genetic diseases and support in having better life quality, as following:

  • Acces to investigations, tests, and treatments that are specific to their disease;
  • Promoting and organizing of events to inform the large public about the symptoms and specific treatments for cardiac genetic diseases;
  • Contact and keep in touch with similar organization across Europe, with the purpose of having access to the potential, experience and scientific and social resources to be valued in the patient interest;
  • Creating a platform in which the patients can communicate their experiences, and support to each other;
  • A platform where problems can be brought into doctors attention, and suggestions can be given

The diseases we want to represent are : hypertrophic  cardiomyopathy, dilated cardiomyopathy, Arrhythmogenic cardiomyopathy, Left ventricular noncompaction, restrictive cardiomyopathy, Brugada syndrome,  long QT syndrome.

For more information:

Representative: Radu Balan