November 21 & 22 2018: 4th Conference on the ERNs (Brussels, BE) The 4th ERN conference gathered more than 400 participants. ERN GUARD-Heart was represented by ten persons, including health professionals, project management, CPMS helpdesk and a patient representative. https://ec.europa.eu/health/ern/events/ev_20181121_en
November 15 2018: CPMS workshop for ERN experts The newly installed CPMS helpdesk for ERN GUARD-Heart will be trained to become experts in CPMS. The training will be on November 15 2018 in Brussels.
September 6 and 18 2018: RD-Connect webinars An invitation for ERN members to join RD-Connect, an international platform for rare disease data analysis and data sharing. Togerther with the ERN EURO-NMD, RD-Connect is organising a series of webinars aiming to READ MORE
4th Boardmeeting ERN GUARD-Heart On August 28 2018 the fourth official Board Meeting of ERN GUARD-Heart was held in Munich, Germany.
Therapeutic Innovation in Inherited Cardiovascular conditions Symposium On 8 June 2018 the Therapeutic Innovation in Inherited Cardiovascular conditions Symposium was held in London.
Cardiac Hereditary Diseases On 3 April 2018 the Cardiac Hereditary Diseases course was held from 8:30-17:00. The topics discussed are “Genetic diseases – an introduction”, “Nonsarcomeric causes of hypertrophic cardiomyopathies”, “Arrhythmogenic cardiac diseases” and “Genetic cardiopediatrics”.