Second Network Board Meeting
Following the official kick-off meeting of ERN GUARD-HEART in March 2017 in Vilnius, Lithuania, the second Meeting of the Network Board was held on 27 August 2017 at San Juan de Déu Barcelona’s Children Hospital, during the European Society of Cardiology congress. The meeting was participated by 22 of the 24 representatives of the participating centres of the ERN. The meeting was also attended by representatives of four patient advocacy groups across Europe (see Patient Advocacy).
Arthur Wilde, the coordinator of the ERN, and Ahmad Amin, the project manager, gave a presentation about the current activities of the Network. Several issues were discussed among Network members including second opinion service set up with e-tools provided by the European Commission, patient and family participation, research projects & patient registries, education strategy, definition of clinical outcome indicators, and the implementation of internal and external communication channels.