I was born in 1971 with a genetic heart mutation: a hypertrophic cardiomyopathy. As a political scientist I have been working for the Dutch Ministry of Justice and Police Force. After my pregnancy in 2002 I developed severe heart failure and suffered serious arrhythmias. After many cardioversions and ablations I ended up on the waitinglist for hearttransplant. On October 28th 2018 I finally underwent hearttransplant.
Nowadays I work as a cardiac expert at the Noordwest Ziekenhuisgroep in Alkmaar (the Netherlands) and become an international patient advocate for raising awareness for heart failure and cardiomyopathies at the global network iHHub and The Heart Failure Policy Network. My Dutch novel about my life as a heart patient has been translated in 2015 and is available on Amazone.com under the title: “Open-hearted, my life with heart failure & cardiomyopathy”. For the magazine of the Dutch Society of Cardiovasular Nursing (NVHVV) I write quarterly columns.