CPVT meeting Amsterdam On Saturday November 9th 2019 a CPVT meeting for patients and their families will be organized in AmsterdamUMC, location AMC. For more information please see the flyer and the program. Please register for the event by filling READ MORE
Participation of patients with Long QT Syndrome in sports Health care professionals are invited to ask advice for their long-QT patients, with regard to their participation in sports. This can be done by uploading patients information in the Clinical Patient READ MORE
Foundation Heart4Research launched app for medical studies and registries On March 28th, foundation Hart4Onderzoek (Heart4Research) launches in collaboration with European Reference Network (ERN) Guard-Heart Cardiac PATROL: Cardiac PAtient Trial and Registry TOoL. The app contains relevant scientific studies and database READ MORE
Dutch meeting for patients with long QT syndrome On March 2 2019 the Dutch meeting for patients with long QT syndrome was held in Amsterdam. The meeting was organized by ERN GUARD-Heart. Programm and flyer of Duth LQTS day
German ARVC day On February 23 2019 the German ARVC day was held in Munich. Flyer German ARVC day
5th ERN GUARD-Heart board meeting On Februari 13 2019 the 5th ERN GUARD-Heart Board Meeting was held in Paris.
ERN GUARD-Heart Patient Groups meeting On December 9 2018 the ERN GUARD-Heart Patient Groups meeting was held in Barcelona.
Educational meeting: The A to Z of Sudden Cardiac Death On December 6 2018 the first educational meeting of the European Reference Network was held in Hallam Conference Centre, London. The topic of the educational meeting was sudden cardiac death. READ MORE
November 21 & 22 2018: 4th Conference on the ERNs (Brussels, BE) The 4th ERN conference gathered more than 400 participants. ERN GUARD-Heart was represented by ten persons, including health professionals, project management, CPMS helpdesk and a patient representative. https://ec.europa.eu/health/ern/events/ev_20181121_en
November 15 2018: CPMS workshop for ERN experts The newly installed CPMS helpdesk for ERN GUARD-Heart will be trained to become experts in CPMS. The training will be on November 15 2018 in Brussels.